共同设计改善中风后性康复的计划：创新方法的承诺
Co-designing a Program to Improve Post-stroke Sexual Rehabilitation: The Promise of Innovative Methods
——原载《康复科学前沿》2022年5月11日网络版——
<Frontiers in Rehabilitation Sciences>, Published: May 11, 2022
【摘要】简介：大多数中风患者在康复期间可能会遇到性困难。然而，由于与组织（例如文化）、管理者（例如缺乏资源）、临床医生（例如缺乏知识、技能和舒适感）和当事人（例如，禁忌）相关的因素，很少有人在康复期间有机会解决性问题。为了改变中风后性康复的实践，需要一项针对利益相关者的需求量身定制的多因素计划和各种补充干预措施。目的：与利益相关者（即中风患者、合作伙伴、临床医生、管理者和研究人员）共同设计一个理论驱动的多因素计划，以改善中风后的性康复服务。方法：这项定性研究将使用干预映射方法和共同设计方法分四个步骤进行，分为四个阶段：（1）探索； (2) 协同设计； (3) 验证； (4)发展。来自魁北克省（加拿大）五个不同的中风康复中心的中风患者、合作伙伴、临床医生和管理人员以及研究人员将被招募在整个研究过程中参与咨询委员会或工作组。来自三种不同类型组（咨询组、乐高®组、工作组）的贡献的组合将用于数据收集。定性数据分析将首先由两名独立评审员使用理论领域框架来实现，初步分析结果将由顾问和工作组进行验证。结论：本研究将导致共同设计第一个旨在优化中风后性康复服务的理论驱动计划。【关键词】性行为, 中风, 康复, 协同设计, 实施, 干预映射
[Abstract] Introduction: Most people who sustain a stroke are likely to experience sexual difficulties during their recovery. However, few people get the opportunity to address sexuality during their rehabilitation because of factors related to the organization (e.g., culture), managers (e.g., lack of resources), clinicians (e.g., perceived lack of knowledge, skills, and comfort), and clients (e.g., taboo). A multifactorial program tailored to stakeholders' needs with various complementary interventions is needed to lead to a change of practice in post-stroke sexual rehabilitation. Objective: To co-design with stakeholders (i.e., people with stroke, partners, clinicians, managers and researchers) a theory-driven multifactorial program to improve post-stroke sexual rehabilitation services. Methods: This qualitative study will be conducted in four steps using an Intervention Mapping approach and a co-design methodology divided into four phases: (1) exploration; (2) co-design; (3) validation; and (4) development. Persons with stroke, partners, clinicians and managers from five distinct stroke rehabilitation centres in the province of Quebec (Canada), and researchers will be recruited to either participate in an advisory committee or working groups throughout the study. A combination of contributions from three different types of groups (advisory group, Lego® groups, work groups) will be used for data collection. Qualitative data analysis will first be realized by two independent reviewers using the Theoretical Domains Framework, and preliminary results of analysis will be validated with the advisory and working groups. Conclusion: This study will lead to the co-design of the first theory-driven program intended to optimize post-stroke sexual rehabilitation services. [Key words] sexuality, stroke, rehabilitation, co-design, implementation, Intervention Mapping
论文原文：Louis-Pierre Auger, Dorra Rakia Allegue, Ernesto Morales, Aliki Thomas, Johanne Filiatrault, Brigitte Vachon and Annie Rochette (2022). Co-designing a Program to Improve Post-stroke Sexual Rehabilitation: The Promise of Innovative Methods. Frontiers in Rehabilitation Sciences, Published: May 11.https://doi.org/10.3389/fresc.2022.777897
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